I have been cuddling with my babygirl all morning...she spent the day playing with her cousins at the beach yesterday.  She had a BLAST!  Today, her chest sounds a bit worse so I am cuddling...she wants to get up and play and I just keep trying to bribe her to lay with me a cuddle (another Elmo???)...I just keep thinking of Ayanna and I am heartbroken.  I know how blessed I am to have my girl with me here...at home...boogie sick and all...so blessed!

Our sweet little friend needs our prayers now more then ever...her second liver has collapsed and her kidneys have failed...she is now in dialysis.  She just had a freaking cough 2 weeks ago...I am heartbroken.  To boot her family had a toilet piece break in their home and everything is ruined. I KNOW that they do not care about any material anything....all they want is their healthy girl back with them...Trust me when I say that they would lose anything and everything to make sure Ayanna gets better....but it all just compounds ... it is too much. 

Here is Maggie's last update:

http://www.caringbridge.org/visit/ayanna07

This update.....is so hard to type. She is still here, fighting for her life....Yesterday her lungs got worse...Im saying the same thing over and over...How can things get worse?? All day they were giving her fluids, lasix, more fluids more lasix to make her pee...No pee....Then her kidney numbers doubled. Then she was in kidney failure. She still is. Right now she is on Dialysis...She has machines keeping her alive..ive never been so heartbroken, sad, lost in my entire life. My baby girl is alive because of machines. Her face has blown up again, they have stopped her feeds and are going to start TPN, which short term is OK, but long term is bad for the liver. Her chest x-ray looks a little "less dense" as they put..right now all the words are just scrambling in our brain, I barley hear what they say anymore...I just know she is still here.
When her kidneys were shutting down, and her blood gas numbers(those let you know how the lungs are carrying oxygen to the blood, I think) came back bad her trasnplant doctor called me, it was about 7 or 8pm, Im not even sure. He called me to tell me things were not looking good, and he didnt think she was going to pull through. He said get daddy back now... Daddy was dealing with the crisis back home (more on that below) but got right in the car and headed here. Dawn was here with me, and I sat here for an hour with my princess, talking to her, telling her I am here and Im not going anywhere and daddy was on the way..Fast forward an hour or so, the pulmonary doc (whos shift ended 4 hours before and she was here for Ayanna) came in and said that she is going to suction out her lungs, she didnt think that was going to help but she was going to do everything she could. She scutioned, took another blood gas, and it was MUCH better..My amazing little girl...THey talked outside the room for a few minutes and came to me and started talking about dialysis. They said "if we didnt have any hope, we wouldnt be asking for consent to do this"...I said do what you have to do to keep her alive..I WANT  HER BACK!!! That same doc that called me to tell me the news came in, Dr. Island...At that time daddy was coming in and I just pointed for the doc to go talk to him..I just couldnt do it. Daddy got the same news I did..We are trying to focus on the positive...She is here, we are here with her. They are doing everything they can, I know in my heart they are. She still needs prayers, she still needs to heal. I just want to scream.......
Daddy was at home because of the whole flood fiasco...Turns out, its an estimated $50,000 worth of damage...My house is not my house, the walls are gone from the floor to 3feet up...No baseboards, no furniture...everything is out... We wanted to thank everyone for thier help, we love you all and thank you for coming together for us...I cant even worry about this right now..At least the insurance company jumped into action when we said that Ayanna WILL come home and she CANNOT have mold in this house. SHe is immunosupressed and cant have that anywhere near her. All of our family and friends came together and got all of our stuff out...Its ok...it can and will all be replaced....I dont care how long it takes...I dont care if we live in someones garage, I want Ayanna better...I miss her so much and yesterday it was too much for a doctor to tell me that they dont think she will make it...She just has to....She is our whole world. I love you baby girl. Mommy cant wait until you say "mommy hold you" again.