March 25, 2010

I am planning to visit Ayanna this weekend so I will let you know how she is doing then...please keep those prayers coming!

Savvy had another doctor's appointment today.  I know we go to often when she gets excited at the site of seeing him!  Dr. Ponytail is awesome so I can't blame him...but we have to see an ENT at this point.  Whatever she has had seems fine at this point but she still can not breathe through her nose...tried different things and nada...thing is the recommended ENT doesn't have an appt until May 2!!!!  I have a call in to see if we can get another ...

She had her labs done this week too!  She is so brave, I have no words to describe it.  I told her that I wanted to be just like her...really I DO!  She started to get nervous when the needle came out ... augh...this guy obviously didn't do kids often (although he got her first stick!!!) because he just dangled that needle in front of her for so long...I was getting nervous too...and we are pros at this...finally I spoke up and told him to get some stickers cause I could feel her tensing and her eyes starting to water...I told him to put the stickers next to the viles so she could keep her "eyes on the Prize!"...that worked!  The lady next to her sucked it up after watching Savvy!  Her little arms have been stuck just toooo many times....toooo many.

The amazingly wonderful news is that I heard back from her transplant team and her liver seems to be happy with the lower dose of prograf!!! So, we are keeping her on the current dose...the less of this toxic mess she has to intake everyday the better!!!  Can't tell you how happy we are for this news...now...we just have to get her breathing again!

Oh...and the ridiculously cute Warrior Princess....she did her first "review" on her food site...it is adorable if I do say so myself...nomooforme.blogspot.com/ - I am so glad she liked what she was eating (mac and cheese for the first time ever!!!) because it would have been so embarassing if she would have said, "Yucky", cause you know me...I would have kept that in!  I just wouldn't be able to help myself