Such a rollercoaster this liver journey takes us through...I am only sharing this because I know every once in a while I will hear from a family that has stumbled upon my blog because they like I were searching the net for hours upon hours after hearing the news...your child has been diagnosed with Biliary Atresia.  I keep writing this blog to share the hope...I know it was sucked out of me when I heard the news that my baby ... tiny baby..my perfect angel needed a liver transplant.

I was so overjoyed to hear about the decrease in Savvy's prograf...my first thought and feeling...I literally wrote back "WOOOHOOO!" lets get started.  Super Papi ... he is scared and stressed...his first thoughts and feelings...Rejection is word that scares us..."playing" with her medication is scary.

I write this because I know that I have one of the strongest men on earth.  He is an amazing Super Papi that has dealt with more crapolla watching his princess suffer then any father should have to.  I write this because he is at work and I am at home and I can't imagine what it is like to go out every single day and leave this precious (and sassy) little one everyday on a good day but how tough it must be when you are scared for her.

I write this because I know that he is not as open as I am in telling everyone about his feelings...heck I shout it out to the world...if there were a pedestal on top of the world in which I could scream how much liver disease suck I would and I would probably push anyone who wants to come on that pedestal right off....cause...that is just the way I am....LIVER DISEASE SUCKS!  But with all of the SUCKINESS we also have the most amazing little girl in the world.  One who loves to cook dinner with her Super Papi every night.  One who insists on wearing a tiara and a hard hat when working with her tools...one that makes her Super Papi scared only because he has never loved so much...nothing scares you more then putting the most precious thing on earth in any kind of jeopardy...no matter how small.

So....to you Super Papi and to any other daddy who ever reads this...liver disease sucks...you should be scared at times....but remember how lucky you are to love someone so much that fear can instantly fill your heart. Only love can give you that kind of fear...and only love can take it away....we love you Super Papi....oh....and remember....as you told Savvy last night...

There must be a birthday party we have to celebrate for someone somewhere...so be ready to celebrate a birthday party for someone tonight...we have the decorations and hula skirts ready to go!