March 5, 2010
You know when your day starts off with your little girl taking a nice poo on her potty...you just know it will be a good day! Our life in the last 3 years have been measured with poop so today...I just had a good feeling!
Drum Roll please......
Just heard from CHOP....we are decreasing her Prograf!!! Her liver numbers look great so since her prograf (Tacrolimus) is an immune suppressant and she has not been able to kick this "cold/bug" on her own for a month now...we are going to decrease her prograf to half the amount she is currently taking! She will be back down to 1ml!! This is great news...the less of this toxic junk (and I mean TOXIC) in her body the better! We are going to have to redo her labs in 2 weeks to make sure her liver is happy with this. If you recall (okay..probably not but Super Papi and I recall every second), she was on 1 ml of prograf before for a good while and then her liver decided it wasn't too happy with that low dose so she had to go back up to 2 ml...my hearts desire is that ... and I know it is a dream...but one can dream and hope...that she one day gets off this toxic drug and can sustain her new beautiful liver on her own...no drugs...no rejection...my dream...my heart desires this but I know that my prayer for her was granted the day she was given her chance at life...so anything else blessed upon us on this rollercoaster is a dream come true!
Good Poop + Good Liver Number = Good Day!
Happy Friday!!!!